“… more than medical” is a collaborative project with parent and Project Lead, Rebekah Docherty and contributing families from the Down’s Syndrome Community in the UK.
The project takes the form of a booklet of which its content is sourced directly from local family experiences and is designed as an information resource for parents and a tool for professionals beginning from the point of NIPT (non invasive prenatal testing) discussions and options, through to a post natal diagnosis.
The goal of this project is to ensure all parents throughout the UK receive current, complete and balanced information about life with a child or adult with a Down’s Syndrome diagnosis. It also provides the opportunity for parents to access local families and support groups directly for information and support.
The projects first regional booklet has been published for Cambridgeshire and has been endorsed by the Down’s Syndrome Association.
The next regional booklet is due for release in March 2017 covering Oxfordshire and a booklet for Bedfordshire will follow soon after. Further regional booklets release dates will be advised as soon as possible.